“Out of Line” or “Out Spoken” is something I have been called alot in my life but never more then when I had to be my sons voice. I make no apologies for being my sons voice, making those in positions of so-called power uncomfortable or for being “that mom.” If your like me your child is your life and you will do anything and everything for them including getting completely out of your comfort zone and ruffle whatever feathers need ruffling on their behalf – with no apologies. I was never rude or disrepectful to teachers, administrators or any staff I refused to let my sons needs not be met and you should to.
Rewind a year my son exited his bus in tears, shoulders slumped over telling me how his 4th grade teacher told him he would never read and I knew by the look in eyes he was crushed. Thats when my foot hit the gas and I didn’t look back. I hired an amazing educational advocate, called an emergency IEP meeting and we had my son removed from that teachers classroom. That meeting was one that I think about every damn day, the silence in that room, the lack of ownership and accountability by all present, the excuses, the lies and the tears in that room lit a fire in me that only gets stronger by the day.
Under the advice of my very experienced advocate I pursued outside private evaluations and that is something I highly reccomend. One thing you must understand is that testing performed by the school, inside the school might save you financial expense, but I can promise you benefits only the school, not you and certainly not your child. The benefit of private testing is that private testing gives accurate data and facts that you can take to a meeting and that data and those facts give you ammunition to fight for your child.
One invaluable evaluation was the Neuro Psychological testing. The most beneficial factor of neuropsychological assessment is that it provides an accurate diagnosis of the disorder for the patient when it is unclear to the psychologist what exactly he/she has. This allows for accurate treatment later on in the process because treatment is driven by the exact symptoms of the disorder and how a specific patient may react to different treatments. The assessment allows the psychologist and patient to understand the severity of the deficit and to allow better decision-making by both parties. The specific sub-tests done are discussed by the doctor with the parents and varies from child to child based on symptoms and medical history.
The second evaluation that gave us valuable insight and date was an assistive technology evaluation. Assistive technology (AT) is assistive, adaptive, and rehabilitative devices for people with disabilities or the elderly population. People who have disabilities often have difficulty performing activities of daily living (ADLs) independently, or even with assistance. Our son had his done by the wonderful specialist from Commuincare I cannot say enough how amazing this company is.
The third evaluation that gave us a most complete picture of my son was a thorough speech and language evaluation performed by UMASS in Amherst, MA. They sit with you and go through not only the medical history of the child but who this child is, they listen to the parents and that in my opinion and experience is something that is not valued enough. They test not only for speech and communication disorders, but perform hearing tests and check to see if the mouth and jaw are working together properly.
I cannot tell you how many meetings and meetings about meetings I have been a part of but I can tell you I had seven meetings throughout grade four alone. In those seven meetings alongside my Advocate armed with facts and data I took my power back as parent, I took my son’s future back and handed it to him in the form of White Oak, I gave him something more important than education – I gave him hope, I gave him a community who understands. The road was anything but easy and I am learning everyday, but as I look back how everything over the last ten year played out, the good and the bad I will not regret being called Out of Line or Out Spoken and neither should you. Fight with dignity. Fight with grace. Fight with Love.
Here are some resources I hope help you.